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I Have Stage 4 COPD And Bronchiectasis, 2 Days Are Never The Same, Most Days Are A Struggle, Some Days I Just Sleep Most Of The Day, I Have.

A MyCOPDTeam Member asked a question 💭
Birmingham, UK

I have Pseudemonus and nebulae 6 times a day, do chest clearance and sleep with bi pap as retain co2

October 12
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A MyCOPDTeam Member

I too have bronciectasis with a colonization of pseudomonus in my lungs. My infectious disease doc has just started me on nobramycin and for the 1st time in forever I feel pretty good ! I also have MAC so there was lots of damage from that since insurance wouldn’t cover a CT scan , once they did, people were jumping thru hoops … but the damage was done. :(
My biggest problem was finding a team of doctors that actually listened and cared, It has been a long journey, but I finally feel like this might really make the difference. Don’t give up, educate yourself and be the squeaky wheel!
And keep moving !!!

October 13
A MyCOPDTeam Member

Am the same now I just take it one day at a time . Try to keep active as much as you can I no it’s hard . Just rest up when you need to 👍🏻

October 13
A MyCOPDTeam Member

Sorry to hear that you have Bronciectasis,on top of COPD. I have Bronciectasis only. I hope your doctor is treating you for the Pseudemonus.🤗

October 12

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