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Hospice

A MyCOPDTeam Member asked a question 💭
North Olmsted, OH

My dr told my husband who has COPD to start to look into hospice what do I do now?

April 2, 2018
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A MyCOPDTeam Member

I was a hospice nurse for 7 years.

Call agencies and have them come talk to you. Interview them. There are good ans not so good fits.

You want an agency that supports your loved one and the family.

They will provide some equipment, comfort medications, take over oxggen. They can provide a 'post', so anyone knows what your preferences for care are.

They set up a plan for visits with your input. They can make visits any hour of the day or night. They can be with you at the end, and you have bereavement support for 12 months after your loss.

It's so different than when my dad passed in '74. Hospice was not yet available.

Hospice makes a passing peaceful, as opposed to having to call 911, and having all emergency services, sherriff and coroner arrive at an expected death.

You have a right to choose. Call your doc and ask if they have names of agencies. You could call your hospital and ask if they have a list. Don't settle for one. You deserve the best.

April 3, 2018
A MyCOPDTeam Member

Hospice is generally recommended when the important thing is to keep the patient comfortable and the disease has progressed to the point where death is within six months or so. You probably should investigate both hospice and palliative care. They are different and offer different approaches. You can decide whether either is something you want to try or if you don't want either. You can't make a decision unless you learn what's available and how the two approaches differ from each other.

April 2, 2018
A MyCOPDTeam Member

The love of my life has been gone now for 3 years and it still feels like it was yesterday. I still grieve but I try not to let it consume me. My children and our memories keep me going.
No one has the right to put a time period on it. The truth is love is so much deeper for some.
Like you I didn't want pills to cover it up. I needed to deal with it in my own way....

April 8, 2018 (edited)
A MyCOPDTeam Member

The dr told my husband that his lungs have deteriorated and he wants to make my husband comfortable.

April 5, 2018
A MyCOPDTeam Member

Hospice can provide a CNA for personal care, bathing, some family respite for an hour or so.

They manage breathing , anxiety, pain symptoms and provide comfort. If skin issues are an issue they can help with that.

Hospice is the doctor's eyes on the patient who he believes may not have long to live based on symptoms and conditions. The hospice nurse is the go between, so you no longer have to figure out how to make office visits, that are difficult for all of it you.

April 4, 2018

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