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Being That I'm Soon Going To Have To Use Oxygen For Exercise And Sleep, Does This Mean Most Likely I'll Eventually Need Oxygen 24/7?

A MyCOPDTeam Member asked a question 💭
November 26
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A MyCOPDTeam Member

Try meditation classes or you tube videos, @A MyCOPDTeam Member, as well as tai chi. You never know what you may find enjoyable that will help you.

Thursday night, 28-NOV-24

November 28
A MyCOPDTeam Member

Thank you for your replies. My doctor said my high state of anxiety can definitely effect my symptoms and my oxygen levels. I'm desperately working on that right now.

November 28
A MyCOPDTeam Member

No one size fits all, each of us are different. I was on nighttime oxygen for 5 years and went to ambulatory and anything strenuous 4 years ago.
You can help by staying active, exercising, walking, and eating a healthy diet.
Do not let stress or worry get to you. That is when you tighten up your chest muscles and lungs making breathing harder on you. You will be just fine for now with the O2 you have been prescribed.

November 27 (edited)
A MyCOPDTeam Member

Not a doc, @A MyCOPDTeam Member.

There’s no one-size-fits-all oxygen user. Think of it like crutches if you broke your leg. You wouldn’t expect to walk on a broken and healing bone without pain while it’s healing, and how well you are able to heal is largely dependent on you following recommendations while you’re trying to heal and figure out your new normal.

In my case, I was supposed to be on supplemental oxygen 24x7x365 as of 2021, when first diagnosed. In my case, nobody told me anything more than using it while sleeping, so I I never got portable equipment and I still don’t have supplemental daytime oxygen.

I wear a continuous monitoring oxygen saturation ring, and the photo enclosed is from my pulmonary rehab class today.

In 4 hours of effort, my oxygen only dropped to 88% during one instance (it usually happens when I’m driving or at the movies and otherwise sitting quietly). In my case, the ring vibrates to alert me to my ox sats dropping, and I used pursed lip breathing to get my saturation rates back up into the desired range of higher than 92%.

So, focus on figuring out what you need to be your best. Get a copy of your doc’s Rx to make sure you understand your prescription and best practices to retain your independent.

It’s still early days for you to figure out your new normal. Work with your respiratory specialist(s), ask if pulmonary rehab may help you (if you aren’t already in a program), and define your short term and longer term goals to figure out what’s possible for helping you retain your independence, as well as what that might look like for your future.

Tuesday evening, 26-NOV-24

November 26

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