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Partner Has Trelegy Inhaler But Is On A Trelegy Machine To Breathe At Night. Al I Misunderstanding What The Machine Is Called?

A MyCOPDTeam Member asked a question 💭
Iola, KS
June 30
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A MyCOPDTeam Member

I had to give up my portable condenser, it did not provide enough oxygen for me so I am back to using the tanks that I can set at 6lt or 7lt as needed. I couldn't figure out why I was so out of breath with the condenser set at 5lt, they also brought in a bigger condenser that goes up to 10. I am fortunate to live in Canada and these things are covered.

July 1
A MyCOPDTeam Member

His Trilogy machine is hooked to oxygen. His oxygen is set at 5 L. He wears it pretty much all the time. It’s on a very long cord that reaches through out our one story home. He does have a portable that he uses to go out. Although about the only time he goes out is to the Dr. The portable unit does not work as well for him, even though it is set at 5L. Pulmonologist explained how they work in different ways.

July 1
A MyCOPDTeam Member

Hi Mimi. That is a common confusion, you are not alone!
The medicine is TRELEGY. You can click on the blue word to read more about it. The machine is TRILOGY, made by Phillips. It is one brand of NIV (non-Invasive Ventilator) machines. They are often connected to an Oxygen supply as well due to the patients low readings at rest or "play".

That brand suffered with safety /recall issues and is quickly fallen out of favor with the medical equipment companies for COPD care. There is even a class action lawsuit for those previously affected.

To be clear, the NiVs help remove CO2 gases from your blood stream when the breathing volume is reduced during sleep. But they also have enough pressure to make one breathe in and out - even if the brain has decided not to do so.
be Well.

June 30
A MyCOPDTeam Member

Thank you so much for the info!

July 2
A MyCOPDTeam Member

https://youtu.be/8AZtgvXdyf4?si=YP86X6_8ekoyrhnl
Room air has the highest amount of Oxygen concentration (at about 21%). Of course, it takes a correct breathing cycle to take FULL advantage of this. Even people without respiratory issues may only have a 95% reading for other reasons during normal activities. I would even bet that maintaining 100% is impossible even for a Youth or Athlete. But I digress.

Supplemental Oxygen helps make up for the deficiency (adding about 3% for each full Litre flow) but it is just that - Supplemental! It does not replace the Primary breathing function. Unlike 100% concentrated Oxygen in the tanks, the portable machines DO NOT put out a constant flow. Here is a good explanation of how they actually work:
https://oximedical.com/a-guide-to-understanding...

This video helps explain why the finger readings can vary so dramatically. There are many talking points about using a POC vs Tanks for your next Doc visit, indeed.

A Guide to Understanding Pulse Flow Settings on Portable Oxygen
A Guide to Understanding Pulse Flow Settings on Portable Oxygen
July 2 (edited)

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