Connect with others who understand.

Sign up Log in
Resources
About MyCOPDTeam
Powered By
Real members of MyCOPDTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Am Wodering What People Who Are On 02 24/7 Are The Settings They Are At, And How Much Exercise They Are Able To Do?

A MyCOPDTeam Member asked a question πŸ’­
Manteca, CA

I just never thought I would go from 02 overnight to 24/7 in a few months, and I am struggling with knowing what I can expect, without a crystal ball. I am nearly 74 and not overweight but I missed the opportunity to do the pulmonology rehab when I was released from the hospital last year from an abscess in my right lung that didn't have anything to do with my COPD. Over the years I just did less and less, especially in the heat, and my main struggle was walking uphill at all. A huge part of… read more

July 5, 2023
β€’
View reactions
A MyCOPDTeam Member

I don't know why you went from needing 02 overnight to 24/7 sort of overnight, but now you're there, you need to learn something about 02, how it works and what you can do to control and manage it. 02 is designed not to help your breathing, though it might do that, but to ensure that your 02 saturation level, as measured by your oximeter stays above 88 and preferably above 90 all the time, regardless of what you're doing. Get yourself an oximeter from Walmart or Walgreens and use it. Make notes of what it reads and what you're doing or have done just before you write it down. Go upstairs? Write down what your sats are as you start and what they are when you're up. Go down? Same thing.

02 needs change depending on what you're doing. Learn what your sats are sitting, going to the bathroom, working in the kitchen, going down the hall, taking the garbage out....whatever you're doing be sure you note your sats. Talk with your doc about what you note and get their take on what's going on. See if there are times when you should increase your liter flow. Talk with your doc and see if he'll let you set your own flow based on your oximeter readings. We call that "titrate as you migrate". Most of us who do more than just sit at home understand that we have to pay attention to what's going on and do this automatically; you can learn that too.

Responding to your body's requirements doesn't mean your COPD is progressing rapidly; it simply means that the requirements always changed; you just didn't have to respond before. Now you do. If you respond, you can keep COPD at bay for a long time.

July 5, 2023
A MyCOPDTeam Member

I admit to being a bit surprized πŸ˜‡ by the comments. My concentrater is set on 3.5 and I rarely ever change it. If I overdue it a bit I sit down, take a deep breath through my nose and exhale slowly through my mouth. Might take a minute or two but 99% of the time it works well. Learned that in pulmonary rehab. I do change the settings on my canisters when I'm out and about. I much prefer the steady flow of O2. I try to keep my O2 levels at 92 or above. Good luck and hope things go well.

July 6, 2023
A MyCOPDTeam Member

Hi there. I was like you in the beginning. I caught pneumonia and I went from just overnight to 24/7 in a matter of a 24 hrs. They sent me home and it was at 6L with tanks. OMG are they awful things. Then I went on a concentrator. I did go Rehab and it kind of helped. Anyhow, the Pulmonary Doc at the hospital and my regular Respirologist both told me the same thing. Under 88 turn up your concentrator. Over 90 turn down. I kept doing that and eventually got myself down to 3l. I have to keep changing it every time I get up because I'm anemic and not getting oxygen to my extremeties. Oh, and I'm 67
Good luck. Wish you well.

July 6, 2023
A MyCOPDTeam Member

AliceRose, Ask your doctor to refer you for Pulmonary Rehab again, keep asking, if he/she won't do it, find someone else. Rehab is wonderful and will help you so much
but you must keep it up at home after your 6 or 8 weeks with a therapist.

July 5, 2023
A MyCOPDTeam Member

All great input thanks again πŸ˜ƒ

July 6, 2023

Related content

View All

I'm Wondering Why People Who Struggling To Breathe Unable To Do Anything Don't Go On 02 Supplement.

A MyCOPDTeam Member asked a question πŸ’­
Manteca, CA

Oxygen

A MyCOPDTeam Member asked a question πŸ’­
Oaklyn, NJ

For Anyone Using A Pulse Dose Portable 02 Concentrator...

A MyCOPDTeam Member asked a question πŸ’­
Manteca, CA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in