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I Have Been Diagnosed With Copd And My Left Diaphramgh Is Paralysed Wich Means Inhalors Are Useless Has Anyone Else Have Something Like This

A MyCOPDTeam Member asked a question 💭
Mold, UK

my specialist says nothing can be done for me and has discharged me back to the care of my gp

September 8, 2015
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A MyCOPDTeam Member

Maybe your GP knows your body better than the specialist and can help you more than the specialist. My GP spends way more time with me than a specialist does. I would get another opinion if I were you, even if you want to see another specialist. They all don't take the time they need with their patients.

September 8, 2015
A MyCOPDTeam Member

Hi to all! I am very familiar with the paralized left diaphragm as mine has been that way for about seven years. My specialest says that the lung works but passavly. I use spariva once a day in the morning and a rescue inhailer now and then. I have not used it at all since I started therapy. I pay attention to blood oxygen and pulse. I am getting to know my body too well. LOL
It is not the end and if you can handle surgery they can stich it down and give you a little more capacity. I have not had the procdure done. I have been under too many times and last time Ox dropped to 30%. I will say that pulmonary therapy has changed my life.

September 13, 2015
A MyCOPDTeam Member

At the very least, you need an explanation of your situation that makes sense to you. Since you're clearly not comfortable with your specialist's answer, I'd recommend another opinion. You specifically want to know how your left diaphragm issue inhibits or reduces the effectiveness of any inhalers. When your specialist says "nothing can be done", he may mean that he is doing everything possible and there are no other treatments to try; not that nothing will work. I wouldn't rely on your GP to be more knowledgeable than a specialist (perhaps more than the one who blew you off, but not than a good one). While your GP may spend more time with you, time doesn't necessarily mean better care. I would ask for a second opinion from a specialist.

September 10, 2015
A MyCOPDTeam Member

Do not give up. Even if you have to do the,research. someone out there has your answer. There is,always help,God Bless ♡ Pam

September 8, 2015
A MyCOPDTeam Member

thank you I will make an appointment to see my GP when I come home from my holiday I to have had a few ops and don't want to have more unless necessary

September 13, 2015

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